Well, I went to Karmanos Cancer Centre yesterday and after the initial intake and a wait of only approximately 2 or 3 minutes. This little Chinese Lady comes walking into the Exam Room and introduces herself as Dr. Heath. Dr. Heath mentions that I'm professional Patient since I was already sitting on the Exam Table and we had a laugh at this. We went through my Health History and she admitted that my Mom's Side of the Family was scary, since we have Cancer and Diabetes, as the Primary cause of death in the majority of the Aunts and Uncles. Dr. Heath asked if I would be interested in doing a Genetic Consultation to find out where in the DNA the problem comes in, I told that I was very interested in this, since she was first one to propose it be done; plus at the same time it told me that she was looking at other areas. I told her that my Dad really didn't talk about his side of the family and she understood and mentioned that it was too bad that I didn't know more about his family health history.
Bottom line here, Karmanos has not 20, not 40, but 60, yes, 60 Clinical Trials going. Compared to Cleveland Clinic and Dr Pelley who offered only 2 Clinical Trials. Well, you guessed it. I commited to going to Karmanos, since they will determine in the next 4 weeks which Clinical Trials to get me into and they are not just talking one, but possibly having 3 or 4 lined up; this way if one doesn't work then they'll move into the next one.
Essentially, for the firsts 5 days of being in the Trial I would be owned by Karmanos, as they get testing and results on how I am doing with it under way, then after this I would be there once a week for a visit with Dr. Heath and the trial. Dr. Heath mentioned that if I she her on a day that I'm scheduled to, other then the usual Hi, how are you? pass by, then there is something wrong and she is there to tell me about it and discuss moving me into another Clinical Trial.
I liked chatting with her since she has a sense of humor and really can take and give shit just like me. She mentioned that there was a Nurse that was in charge of one Clinical Trial that had the same sense of Humor that I do and I thought, shit a female version of me in the Humor Department, too cool.
The Homework that I was given was to find out if my Health Insurance would allow for Clinical Trials, which I found out today that it does and I am happy to see that for once Aetna is looking out for this area and not locking people out. So, this made today even happier for me and I also found the article on Aetna's website that discusses the criteria to be covered for Erectile Dysfunction Treatment also. These two articles just made me extremely happy since the articles detail the ICD-9 Medical Codes that must be used to get coverage, which will help out with the billing department statements being processed properly.
Health wise I'm feeling good and I have a bit of a cough, which happens whenever I laugh too much. Some people assume it's Smoker's Cough, but I know it's not and related to the Nodules in my lungs. I did ask why they didn't go in and remove the nodules on my left lung and treat from there, Dr. Heath said cause I would loose 80% of my Lung Capacity, which would qualify me for the Lung Transplant List, but my name would be put very low on it, since I have cancer. So, I now have a better idea of the severity of the situation, since I've not really asked this before.
I called the Cleveland Clinic and spoke with the Nurse there who is in charge of the Clinical Trial for the Vaccine and I told her that I was going to give Karmanos a try first and would keep them in mind, since Dr. Heath mentioned that Vaccine Trials are not really that popular for Cancer, and they usually do not produce the results that the Pharmacological Path does. Since the Pharmacological will usually be a combo of Pills and IV drugs or a combo of IV Meds, such as Avastin and something else. I felt a little more at ease hearing this, so in the next 4 weeks I wait to see what course is charted for me, since Dr. Heath wants to stay away from the Avastin Treatment, since I've already had it. Good News was heard yesterday and located today, so I must be looking in the right areas and asking ther right questions without being misled.
This is a Life Blog and how Cancer has changed my personal outlook and daily life.
15 May 2009
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