Well, yesterday I started the Clinical Trial and it really well. I have to get use to collecting my Urine for the next couple of days and returning it to them so that they can make sure that everything is going well with Chemotherapy Treatment and how the Trial Drug is being passed through my system. Monday was a long day for Carm and I. We arrived at 6:30am and after going through registration and hauling our stuff up to the Chemotherapy Infusion Area, we looked like nomads with me carrying my book bag with my Laptop and Ostomy Supplies and a few magazines and my MP3 Player on one shoulder and on the other I was toting the cooler that Carm had packed with food for both of since we was not aware of the fact I would be fed while being treated. After, being examined again by the Physician Assistant agian and the usual blood and urine collection taken, I waited for the results to come back so that they could tell me whether or not I would be able to be treated, which I was treated, so this made me happy and helped to ease the apprehension that I felt about being there.
The food was the typical Hospital fair, tasteless and bland, LOL.. Breakfast was French Toast, Sausage, Oatmeal, Peaches, Aplpe Juice and Maple Syrup. I surprised that even the Maple Syrup was bland tasting, but then again it may have been me. Lunch consisted of Brown Sugar Glazed Ham, Yams, Roll, and Peaches. Dinner was a surprise since they broke an extra tray in and told Carm and I that we could decide which one we wanted to eat. Tray #1 was Grilled Chicken Breast on White Toast Bread, Grape Juice, Peaches, Salad, Dressing, Cherry Tart and Mayo. Tray #2 was Beef Stew, Roll, Apple Juice, Cherry Tart, Salad, Dressing and something else that I wasn't sure what it was. I ate Tray #1 and Carm took the 2nd tray. The Chicken Breast was fairly decent, after I put a piece of Lettuce on it and added the Mayo. I gave the Cherry Tart to Carm and I added Cottage Cheese that Carm brought along from home and I was filled. Overall the Meals still ranked as palatable and I would not suggest it as a regular diet.
Today, we drove back up for the 24 Hour Post Treatment check and was only there for approximately 30 minutes, after they went over the vitals, medications, Blood Draw and side effects. Side Effects that I've had so far are Burning Sensation in my feet, Hiccups and Constipation, which I was told is the side-effect of the Anti-Nausea Meds. I gave them the Urine that was collected from 11pm last night until 11:15a this morning. This was very interesting since before I left yesterday I had left them 2500cc's of fluid, which surprised the Nurse, so today I was given 2 collection bottles and was told to use them. Tomorrow will be 48 Hour Post Treatment checkup and I will go through the same procedure as today,arrive at 11:30a, drop the Urine, blood draw, vitals and side-effects. This will happen again for Thursday's 72 Hours Post Treatment also.
Next week will be a repeat of this week, so I'll have to make a few arrangements at work for me to get paid for Wednesday. I was suspended for 2 weeks for not following a procedure and I was suppose to return on Wednesday July 8th, which I will not be able to do.
Then on Monday July 13th I'll see the Phyician's Assistant again and get Labs drawn and sent home, this will end Cycle 1 Day 15.
Today while I was waiting for my Blood Pressure to be taken, the machine started, then next thing I know it stopped, since the battery went dead. I laughed and told the Nurse about when she came back in and she rolled her eyes and commented that she didn't understand why they have to continuously plug them into the wall to get them to work. After finally getting my BP and temperature taken the Nurse went through the other stuff and I left.
Well, enough for now, I'll post more tomorrow, since it's going to another busy day, with having to go to Karmanos, then make a coupld of phone calls to straighten out some insurance crap and pay da rent.
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